To explain where stories come from, we helped Leila and Rahul make their own mini-books. I transcribed their stories.
Natasha Visits Dr. Leila
by Leila
Doctor Leila goes for a walk.She goes to the nurse’s house. The nurse goes to Dr. Leila’s house. They do a blood test for Natasha. They check Natasha’s heart. (L and R both demand I draw a heart on this page!) They heard dook dook, dook dook, dook dook. Then they checked her lungs. Dr. Leila and the nurse sent Natasha home. Natasha became better.
THE END
The Dragon and the Princess
by Rahul
Once upon a time there was a princess who was stuck in the dragons cave. And one dragon said, “Who is here? The dragons blow fire at her. She called the prince. He faught the dragons with his sword. The dragons threw fire on the prince as well. The dragons left the cave.
THE END
Wonderland
by Rahul
Once upon a time there was a dragon and a princess. The dragon blew fire on the prince and princess. Then suddenly, the nice fairy appears and fights with the dragon. And the dragon flew away.
THE END
Nemo the Shark by Rahul
Nemo the shark bites everyone. But he is scared of the dragon. One day Nemo met the dragon in his house! (R: Mama put an excamashun mark) The dragon blew fire on Nemo. It hurt a lot. (R: draw a dragon here. Blowing fire. – I managed a dragon brontosaurus dog with whiskers blowing a sock.)
In July last year, Maher bought me an iPhone for our anniversary. My frist ever Smartphone. Of course, I didn’t even open it for a few months. Now I’m hooked.
And then my brother introduced me to WhatsApp while complaining about how people don’t just pick up the phone and call for a few minutes. Instead they chat on this thing for hours on end.
Then last month one of my friends suggested I get it. So here I am now, chatting with my friends around the world, anytime of day or night – and yes, sometimes it’s more of a monologue than dialogue. But they understand, they know I’ve lived on the moon for the last ten years.
I was chatting with some of my friends while my kids were in hospital last week. Sending emails too.
A couple of weeks into the NICU experience in Nov and Dec of 2009, one of the nurses organised a Parent Support Group. After some hesitation, it being our first “support group” and all, Maher and I went. We were only two couples in the English speaking section, and the woman leading the group showed us a day-by-day photo album of her twin boys born there, at 26 weeks gestation. Actually, one of her 6-year-old sons was taking us through the pics himself. His mum openly discussed the challenges her family faced at the NICU and over the following years. Of course, she encouraged us to talk. What struck me was that the other couple had shared their baby’s photos on Facebook. Their naked baby with a ventilator, feeding tubes, bandages, IV’s, the works.
They found love, support, and strength through their network of family and friends.
I, however, was unable to call my own brothers. I almost dialed my closest childhood friend’s number a few times. Even did once, a few days after Rahul was already home. Chatted for a few minutes.
A couple of friends of mine dropped everything that was going on for them in Chengdu and came to see me in HK. I barely even spoke to the one who stayed two weeks. She got to know my mum amd mother-in-law a bit better though.
That’s the way I used to deal with things, and during the NICU time and later, this reflex kicked in more strongly than ever before. I felt that no one could help anyway, and isolating myself was the most efficient way to deal with what was in front of me. It made sense at the time because only parents were allowed into the NICU, and I wanted to savor every moment I had alone with my babies. I was too fragile to handle criticism and questions, stress from others, and least of all pity. And there was no way I would break down. Not then.
But then a few months later, both babies out of the NICU, and home in Chengdu, I relaxed. I started to comment on blogs. (Big step!) Then I started my own. I got a VPN in China, to access Facebook again, right after Zambia won the Africa cup. I couldn’t join the celebrations, not even over FB. That was too much for me to handle!
When one of my friend’s twins were in the NICU a year ago, I felt the need to be present. He had no problem communicating with me, explaining, and even listening to me. I was impressed. And now while my kids were in the hospital last week that same friend along with others all listened, and shared their own experiences. It made everything more bearable. Others read my endless WhatsApp monologues.
Thanks for the support over the last couple of weeks, for the brainstorming sessions, the connection. For just being there.
When I saw this talk for the first time a couple of years ago, it was perfectly timed then. I immediately forwarded it to an exhaustive list of friends. A few days ago my cousin shared it with me again. It was just what I needed to hear. Again. For my friends – old and new.
There is much stress and trauma with having a needle injected into a little arm. The nurse in the emergency room here did it well though, there weren’t the usual repeat tries either because of their squirming, fighting, little veins, or just mistakes.
Soon after L and R were born they had IV lines stuck in them, in their hands, and then over the weeks, they sometimes had them in their feet. They were tiny babies, 1.25 Kg and 1.65 Kg. I have no idea how the doctors managed such a feat.
Since she was at the NICU tiny Leila fought the nurses. She kicked, and flailed her arms around. She tried to pull out the feeding tube that was in her mouth, and went though to her stomach.
And this was her here: I don’t want to be locked mum. It’s not fair. I want to be free.
The sense of helplessness in such places and situations is a weight on me.
And then it’s the clogged lines that hurt like hell, that has Rahul screaming. When the flow isn’t smooth, injecting medication into the line leaves him sweating, shaking, and shrieking.
All day long, the moment the door creaks, they both shudder, and the questions start, through the tears.
“What is she going to do now?”
“What does she want?”
“I don’t want any medicine…”
“Why is she here?”
“Mama, papa, mama, papa….”
No pauses between words or sentences.
Then I asked for as many oral options as possible. We all relaxed a bit. Day two the nurses stayed away and out of the room unless necessary. Again the stress eased a lot. The IV’s came out.
We started talking to the nurses and doctors out of the kids ear shot, when possible. They never hear the second half of phrases like “blood test results,” or “injection into the IV line,” they relive their experiences and protest wholeheartedly.
“Only do that to Leila, mama? Not for me? I don’t have to do that?” And next time it’s “Mama, I don’t need to do that? Only Rahul?”
So they are both screaming and crying living and reliving each others experiences.
Today is day three, the fever has finally eased up. Leila held Rahul’s hand through his ultrasound, kissed him when he was scared.
We played in the hospital garden, the knight and the princess liberated the bridge with their swords.